I heard from a co-worker this morning that their newborn baby has been diagnosed with Cystic Fibrosis. I thought I would pass on his message for anyone that is interested and able to give support.
On March 25th, 2009, our son Adrian Abraham Barrett was diagnosed with
cystic fibrosis. While we know the news is sour, we also know that this
will make us treasure each day we have together and hope that we are
together not just months, and not just years, but we hope to be together
for decades. This bit of sour will make the sweet even sweeter. You can
read more about Adrian by visiting his website: Baby BarrettCystic fibrosis is an inherited chronic disease that affects the lungs
and digestive system of about 30,000 children and adults in the United
States (70,000 worldwide). A defective gene and its protein product
cause the body to produce unusually thick, sticky mucus that clogs the
lungs and leads to life-threatening lung infections, and also obstructs
the pancreas and stops natural enzymes from helping the body break down
and absorb food. In the 1950s, few children with cystic fibrosis lived
to attend elementary school. Today, advances in research and medical
treatments have further enhanced and extended life for children and
adults with cystic fibrosis. The median survival age is now 37, with
more than 40% surviving past the age of 18.The Cystic Fibrosis Foundation is making a huge difference in extending
the quality of life for those with CF. However, we continue to lose
precious lives to CF every day. That’s why your help is needed now more
than ever to ensure that a cure is found sooner – rather than later. To
learn more about CF and the CF Foundation, visit
www.cff.org.I’m walking in the Cystic Fibrosis Foundation’s GREAT STRIDES walk at
the Tooele City Park walk on June 6th, 2009. Please help me meet my
fund-raising goal of $3,000.00 by sponsoring me. Your
generous gift will be used efficiently and effectively, as nearly 90
cents of every dollar of revenue raised is available for investment in
vital CF programs to support research, care and education.Thank you for supporting the mission of the CF Foundation, and
ultimately Adrian!
Its sad to hear such news, but I’m sure progress can be made by giving your support. Even if you’re not able to sponsor Jonathan in the fundraiser, by sharing this link and message with others they may have the opportunity to help where you cannot.